Desmoplastic
Small Round Cell
Tumor Charity
We are passionate about making sure that the stories shared on our page are as diverse as those diagnosed by Desmoplastic Small Round Cell Tumour and the paths that they follow. If you would like your story or that of a loved one to be shared here please do get in touch. We want to both celebrate those who have survived or are still battling this disease and remember those who are sadly no longer with us. In the words of Terry Pratchet “No one is finally dead until the ripples they cause in the world die away.” And we are determined to make ripples…
Liz was just 16 when she was diagnosed with Desmoplastic Small Round Cell Tumour. Having just started her A-Levels, she’d spent the autumn term looking around universities and planning her future. She dreamed of being a professional photographer and living in London. Until just before her diagnosis Liz had been the epitome of health, not missing a day of school since she’d had chicken pox aged seven.
Hunter was 21 and was working as full time dispatcher, deputy coroner and firefighter when he was diagnosed with Desmoplastic Small Round Cell Tumour. Prior to diagnosis, he spent the little free time he had, hanging out with friends and family, going out on adventures or throwing a get together. He lived an active and proactive lifestyle, with no concept of what would soon come his way.
Craig was busy working and trying to build the best life he could with his wife when he was diagnosed with Desmoplastic Small Round Cell Tumour. Born and bred in New York, Craig had lost his mother to lung cancer just a year before.
Fourteen year old Sasha, a professional gymnast competing regularly in international competitions had struggled with back pain from late summer 2021.
Cole was an incredible, active 5 year old when his mum first discovered a lump on the side of his stomach. A few days later, when it didn’t disappear his mum took him to see a paediatrician. What followed was a same day ultrasound and CT scan (something that definitely doesn’t reflect the standard experience, which Cole’s mum was very grateful for) the results of which led to an admission to the paediatric oncology unit at St Louis’ Children’s Hospital.